WEBSITES
There are numerous foundations and associations dedicated to supporting individuals and families affected by Marfan syndrome. These organisations are a valuable source of information and practical and emotional support.
INTERNATIONAL FEDERATION OF MARFAN SYNDROME ORGANIZATIONS (IFMSO)
NATIONAL PATIENT ORGANISATIONS
Country |
Organisation |
Website |
|---|---|---|
| Victoria, Australia | Marfan Association Victoria Inc. | www.marfanvic.org.au |
| Belgium | Association Belge du Syndrome de Marfan | www.marfan.be |
| Brazil | The Fundação Marfan Brasil – (Brasil Marfan Foundation | www.marfan.com.br/ |
| Denmark | Danish Marfan Association | www.marfan.dk |
| Finland | Finnish Marfan Association | www.marfan.fi |
| France | Association Française du Syndrome de Marfan (A.F.S.M.) | www.vivremarfan.org |
| Germany | Marfan Hilfe (Deutschland) e.V. | www.marfan.de |
| Ireland | Marfan Syndrome Support Group Ireland, Ltd | www.marfan.ie |
| Italy | Associazione Vittorio | www.marfan.info |
| Japan | Marfan Network Japan (MNJ) | www.marfan.gr.jp (Japanese only) |
| Japan | Marfan Association (JAMAA) | www.marfan.jp |
| Mexico | Sindrome de Marfan de Mexico A.C. | www.marfan.org.mx |
| Netherlands | Contactgroep Marfan Nederland | www.shhv.nl |
| Norway | Marfanforeningen co/FFO | www.marfan.no |
| Peru | La Asociación Peruana del Síndrome de Marfan (APSIM) | marfanperu.org.pe |
| Poland | Polish Marfan Association | www.marfan.pl |
| Slovakia | Slovak Marfan Association | www.marfan.sk |
| Spain | SIMA Asociación de Afectados Síndrome de Marfan | www.marfan.es |
| Sweden | Svenska Marfanföreningen | www.marfanforeningen.se |
| Switzerland | Marfan Stiftung Schweiz | www.marfan.ch |
| United Kingdom | Marfan Trust | www.marfantrust.org |
| United States | Marfan Foundation | www.marfan.org |