WEBSITES

There are numerous foundations and associations dedicated to supporting individuals and families affected by Marfan syndrome. These organisations are a valuable source of information and practical and emotional support.

INTERNATIONAL FEDERATION OF MARFAN SYNDROME ORGANIZATIONS (IFMSO)

 

NATIONAL PATIENT ORGANISATIONS

Country

Organisation

Website

Argentina

Marfan Argentina

www.marfan.org.ar

Victoria, Australia

Marfan Association Victoria Inc.

www.marfanvic.org.au

New South Wales, Australia

Marfan Support Group

www.marfan.net.au

Belgium

Association Belge du Syndrome de Marfan

www.marfan.be

Brazil

The Fundação Marfan Brasil – (Brasil Marfan Foundation

www.marfan.com.br/

Canada

Canadian Marfan Association

www.marfan.ca

Denmark

Danish Marfan Association

www.marfan.dk

Finland

Finnish Marfan Association

www.marfan.fi

France

Association Française du Syndrome de Marfan (A.F.S.M.)

www.vivremarfan.org

Germany

Marfan Hilfe (Deutschland) e.V.

www.marfan.de

Ireland

Marfan Syndrome Support Group Ireland, Ltd

www.marfan.ie

Italy

Associazione Vittorio

www.marfan.info

Japan

Marfan Network Japan (MNJ)

www.marfan.gr.jp  

(Japanese only)

Japan

Marfan Association (JAMAA)

www.marfan.jp

Mexico

Sindrome de Marfan de Mexico A.C.

www.marfan.org.mx

Netherlands

Contactgroep Marfan Nederland

www.shhv.nl

Norway

Marfanforeningen co/FFO

www.marfan.no

Peru

La Asociación Peruana del Síndrome de Marfan (APSIM)

www.marfanperu.org

Poland

Polish Marfan Association

www.marfan.pl  

Singapore

Yahoo! Group for Singaporeans who have Marfan Syndrome

health.groups.yahoo.com/group

/marfan_syndrome_sg/

Slovakia

Slovak Marfan Association

www.marfan.sk

Spain

SIMA Asociación de Afectados Síndrome de Marfan

www.marfan.es

Sweden

Svenska Marfanföreningen

www.marfanforeningen.se

Switzerland

Marfan Stiftung Schweiz

www.marfan.ch

United Kingdom

Marfan Association UK

www.marfan-association.org.uk

United States

National Marfan Foundation

www.marfan.org